SCCAPE is a 4-day, multidisciplinary course for physicians, physician assistants, nurses, social workers, psychologists, community health providers, patients, and their families designed to provide the knowledge and skills needed for participants to understand and optimize the role of a sickle cell disease health navigator (SCD HN) or work in a Sickle Cell Disease medical care team. This interprofessional conference prepares allied health professionals, community-based staff, and volunteers to work together to improve patient outcomes. 

 

At the conclusion of SCCAPE,
participants will be able to:
 

• Review sickle cell disease (SCD) pathology, complications, pain management, treatments and the impact on patients’ general health and lifestyle.

• Summarize the newer SCD modifiers and emerging transformative therapies.

• Identify the impact of mental health concerns in SCD care and discuss behavioral health screening tools and strategies to assist patients.

• Discuss how a sickle cell medical home is developed and describe the critical components of a program including staffing, financing, daily operations and monitoring.

• Describe an effective program to transition patients from pediatric to adult services while providing quality comprehensive SCD care.

• Discuss the role and responsibilities of a SCD medical care team with emphasis on the newer emerging expanded roles of social workers and the inclusion of patient navigators.

• Discuss the impact of racism, complicit and implicit bias, and health disparities on the health of persons living with SCD.

• Describe the U.S. health care delivery system as it relates to SCD care and identify the role of the National Academies of Sciences, Engineering and Medicine consensus report, ”Addressing Sickle Cell Disease: A Strategic Plan and Blueprint For Action”.

• Demonstrate effective communication using techniques such as motivational interviewing and effective communication. 

• Explore the patient perspective of SCD care and how the medical care team can support patients’ efforts to reach optimum health within limitations of living with a chronic disease such as SCD.